In My Shoes

Sunday, April 6, 2008

MyHotComments

Friday night began with a trip to ER with severe abdominal pains. Labs were run, tests ordered and medicines given. The results are: Don't know what is the cause. The doctor's response to these severe pains is more narcotics. The narcotics cause more and more itching. The drugs to counteract the itching maker her very sleepy and irritable. Frustration doesn't describe the feelings Fiona is having at this point. Her life is at a complete stop. She doesn't feel good enough to do much and when she does do something she is sick for days afterwards. She doesn't know if there is an end in sight or if she can hope one day to pursue her dreams again. Wish we could get some answers, some support. We can walk the road if we know where we are going. Right now we are in the dark, holding hands and hoping someone will bring light to our lives.

No comments:

Post a Comment

Biliary Atresia

Biliary atresia is a condition in which the ducts that carry bile from the liver to the gallbladder and small intestine are not normal. These ducts can be injured, blocked, or missing. When the ducts that carry bile out of the liver are closed, bile backs up and damages liver tissue. In time the liver can develop scarring or cirrhosis. The gallbladder may also be abnormal or missing. The cause of Biliary Atresia is unknown. It occurs in one infant in every 15,000 live births. It is a serious disease which requires immediate surgical and medical treatment.

Arteriovenous Malformations AVMS

I have been diagnosed with AVMS in my lungs do to my liver disease. These have caused me to have 2 lung bleeds which were very scary. I still have more AVMS and they are causing me breathing problems. Below is an explanation of what the AVMs are and a picture of what is happening in my lungs.

Arteries and veins are part of the human cardiovascular system. Normally, the arteries in the vascular system carry oxygen-rich blood at a relatively high pressure. Structurally, arteries divide and sub-divide repeatedly, eventually forming a sponge-like capillary bed. Blood moves through the capillaries, giving up oxygen and taking up waste products from the surrounding cells. Capillaries successively join together, one upon the other, to form the veins that carry blood away at a relatively low pressure. The heart acts to pump blood from the low pressure veins to the high pressure arteries.
If the capillary bed is thought of as a sponge, then an AVM is the rough equivalent of jamming a tangle of flexible soda straws from artery to vein through that sponge. On arteriogram films AVM formation often resemble a tangle of spaghetti noodles. This tangle of blood vessels forms a relatively direct connection between high pressure arteries and low pressure veins.
The result is a collection of blood vessels with abnormal connections and no capillaries. This collection, often called a nidus, can be extremely fragile and prone to bleeding.