In My Shoes: In The Hospital Again

Thursday, June 5, 2008

In The Hospital Again

So I was in the hospital again. I went in Tues. and I just came home today (Thurs). I went in with abdominal pain and at first when I went to the ER the doctor couldn't find anything and was just going to send me home with pain killers. But, good thing that he didn't and it's a good thing that my liver doctor stepped in because it turned out that I had a really full colon and if I did just go home it would've gotten worse and more serious to the point where I would've needed surgery. But it took about a day to get a hospital room. I went into the ER at noon and I didn't get a room until 2 a.m. Wed. But I felt miserable the whole time and at least now I feel so much better. I just have to change my meds and manage this problem better. I guess that this problem with the colon getting really full is a problem amongst liver kids or people with liver disease and so all you guys out there watch out for this and don't take it lightly, you know ask you're doctors about it. Before I was having alot of abdominal pain and my stomach was swollen but now I feel so much better and my stomach has gone down. I felt so bad for my mom though. I know how hard this is on her and having to sleep and stay in those rooms is hard but I am so thankful for her. She is my angel and she just so wonderful. I love her very very much with all my heart. Mom, you mean the world to me. But I have to tell you I felt sorry form my roommate. She had been in the hospital for 3 weeks because she had breast cancer and she kept getting blood clots so I hope she does well. I definitely am praying for her. I couldn't imagine being in the hospital for 3 weeks and you could tell she wasn't feeling well. But I'm glad I'm home even though it took over 4 hrs to get my discharge papers and the doctor kept messing up on the discharge form so the nurse eventually had to do it.

Peggy

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Biliary Atresia

Biliary atresia is a condition in which the ducts that carry bile from the liver to the gallbladder and small intestine are not normal. These ducts can be injured, blocked, or missing. When the ducts that carry bile out of the liver are closed, bile backs up and damages liver tissue. In time the liver can develop scarring or cirrhosis. The gallbladder may also be abnormal or missing. The cause of Biliary Atresia is unknown. It occurs in one infant in every 15,000 live births. It is a serious disease which requires immediate surgical and medical treatment.

Arteriovenous Malformations AVMS

I have been diagnosed with AVMS in my lungs do to my liver disease. These have caused me to have 2 lung bleeds which were very scary. I still have more AVMS and they are causing me breathing problems. Below is an explanation of what the AVMs are and a picture of what is happening in my lungs.

Arteries and veins are part of the human cardiovascular system. Normally, the arteries in the vascular system carry oxygen-rich blood at a relatively high pressure. Structurally, arteries divide and sub-divide repeatedly, eventually forming a sponge-like capillary bed. Blood moves through the capillaries, giving up oxygen and taking up waste products from the surrounding cells. Capillaries successively join together, one upon the other, to form the veins that carry blood away at a relatively low pressure. The heart acts to pump blood from the low pressure veins to the high pressure arteries.
If the capillary bed is thought of as a sponge, then an AVM is the rough equivalent of jamming a tangle of flexible soda straws from artery to vein through that sponge. On arteriogram films AVM formation often resemble a tangle of spaghetti noodles. This tangle of blood vessels forms a relatively direct connection between high pressure arteries and low pressure veins.
The result is a collection of blood vessels with abnormal connections and no capillaries. This collection, often called a nidus, can be extremely fragile and prone to bleeding.