Fiona is more or less recovered from her toe surgery. She has a doctor's appt. on Tuesday for her migraines. So far she is tolerating the beta blocker! This is good news on a lot of fronts: it helps (we hope) the migraines, it helps the long QT of her heart AND it helps lower her portal hypertension (they have been trying to do this for a long time and she was unable to tolerate the meds.)
She completed the small bowel study and she doesn't have short gut syndrome. I thought the films were really clear (hahaha, MOM's view). The radiologist brought us right into his room and went over the films right there with us. He could see where all her surgeries were and there are some loops missing but that is to be expected. He also could see where her ileal atresia was that she was born with (missing the end of the small bowel area) but again he didn't think that was a problem at all. She has enough bowel that we don't need to be concerned about that at all! YAY
On Friday she goes for the MRA of the lungs. They are looking to see if there has been any changes in the AVMs that are there or if there are new AVMs that we need to be aware of. She continues to cough up blood on exersion so she takes it pretty easy most of the time. So this is a very important test!
Then on around the 16th she will go back to the transplant center to meet with the surgeon. Hopefully we can get more answers then and hear what exactly they are going to ask for in exemption points. The surgeon doesn't want to wait any longer than he has too, so things are moving really quickly now. Then shortly afterwards she will see her liver doctor.
Peggy
On the fun front, Don and Fiona are going to a concert at the Fairgrounds tonight! I'm sure they will have fun!
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