In My Shoes: Um....done we think

Wednesday, January 21, 2009

Um....done we think

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Fiona had the cardiac echo bubble test today. The pulmonologist said the bubbles should pass to the heart in 4 cycles. If quicker it is a hole in the heart, which we know she doesn't have. The bubbles passed in 3 cycles. The cardiologist said that is too late for it to be a hole in the heart but too soon for it to be the AVMs in her lungs. He is guessing it is AVMs but there must be some closer to the heart than usual.....um....very confusing. We will see what the liver team and pulm say about all of this.

The other tests they wanted had already been done and the results sent over. We heard today that Fiona is the only one from our insurance going to this second center. So everyone is learning the process again. But so far we are still hopeful. She sees her regular pulmonologist next week so will have some information then.

Peggy

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1 comment:

Anonymous said...: me confused.. so this is good? or bad?? I am praying!; January 22, 2009 at 7:14 AM

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Biliary Atresia

Biliary atresia is a condition in which the ducts that carry bile from the liver to the gallbladder and small intestine are not normal. These ducts can be injured, blocked, or missing. When the ducts that carry bile out of the liver are closed, bile backs up and damages liver tissue. In time the liver can develop scarring or cirrhosis. The gallbladder may also be abnormal or missing. The cause of Biliary Atresia is unknown. It occurs in one infant in every 15,000 live births. It is a serious disease which requires immediate surgical and medical treatment.

Arteriovenous Malformations AVMS

I have been diagnosed with AVMS in my lungs do to my liver disease. These have caused me to have 2 lung bleeds which were very scary. I still have more AVMS and they are causing me breathing problems. Below is an explanation of what the AVMs are and a picture of what is happening in my lungs.

Arteries and veins are part of the human cardiovascular system. Normally, the arteries in the vascular system carry oxygen-rich blood at a relatively high pressure. Structurally, arteries divide and sub-divide repeatedly, eventually forming a sponge-like capillary bed. Blood moves through the capillaries, giving up oxygen and taking up waste products from the surrounding cells. Capillaries successively join together, one upon the other, to form the veins that carry blood away at a relatively low pressure. The heart acts to pump blood from the low pressure veins to the high pressure arteries.
If the capillary bed is thought of as a sponge, then an AVM is the rough equivalent of jamming a tangle of flexible soda straws from artery to vein through that sponge. On arteriogram films AVM formation often resemble a tangle of spaghetti noodles. This tangle of blood vessels forms a relatively direct connection between high pressure arteries and low pressure veins.
The result is a collection of blood vessels with abnormal connections and no capillaries. This collection, often called a nidus, can be extremely fragile and prone to bleeding.