In My Shoes: My Vacation

Thursday, August 21, 2008

My Vacation

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I had a blast last week going up and visiting my sister, Lauren. We went to the Jelly Belly Factory, rented movies, went shopping, and just had a lot of fun. Then my mom, my sister, MJ, and I went to Monterey Bay Aquarium and that was a blast. It was really cool. Then we went to Bubba Gump Shrimp and sat right by the ocean and we ate dinner as we watched seals, dolphins and sea otters go by which was incredible. Then we went and visit my grandma which was really nice. I really enjoyed that. I just had a lot of fun last week and it really felt good to get out and forget about everything else at home. When I get the chance I'll post some pictures.

Fiona

P.S. You have to see the Shamu car we saw on the way going up to Lauren's. It was so cool

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Biliary Atresia

Biliary atresia is a condition in which the ducts that carry bile from the liver to the gallbladder and small intestine are not normal. These ducts can be injured, blocked, or missing. When the ducts that carry bile out of the liver are closed, bile backs up and damages liver tissue. In time the liver can develop scarring or cirrhosis. The gallbladder may also be abnormal or missing. The cause of Biliary Atresia is unknown. It occurs in one infant in every 15,000 live births. It is a serious disease which requires immediate surgical and medical treatment.

Arteriovenous Malformations AVMS

I have been diagnosed with AVMS in my lungs do to my liver disease. These have caused me to have 2 lung bleeds which were very scary. I still have more AVMS and they are causing me breathing problems. Below is an explanation of what the AVMs are and a picture of what is happening in my lungs.

Arteries and veins are part of the human cardiovascular system. Normally, the arteries in the vascular system carry oxygen-rich blood at a relatively high pressure. Structurally, arteries divide and sub-divide repeatedly, eventually forming a sponge-like capillary bed. Blood moves through the capillaries, giving up oxygen and taking up waste products from the surrounding cells. Capillaries successively join together, one upon the other, to form the veins that carry blood away at a relatively low pressure. The heart acts to pump blood from the low pressure veins to the high pressure arteries.
If the capillary bed is thought of as a sponge, then an AVM is the rough equivalent of jamming a tangle of flexible soda straws from artery to vein through that sponge. On arteriogram films AVM formation often resemble a tangle of spaghetti noodles. This tangle of blood vessels forms a relatively direct connection between high pressure arteries and low pressure veins.
The result is a collection of blood vessels with abnormal connections and no capillaries. This collection, often called a nidus, can be extremely fragile and prone to bleeding.