In My Shoes: Humorous break in the day

Friday, May 2, 2008

Humorous break in the day

Fiona and I went down to DMV to renew her handicapped parking permit. Of course, no surprise, the line was miles and miles long. We went up to the front of the line and spoke with the security guarding telling her what we needed. There was a special line, very short, for those needing handicapped services. Fiona waited her turn and we got up to the counter. There was a cute young man with the most amazing blue eyes. He asks her to check this and write that. Then he turns the page and says you are going to sign this. Fiona, my artsy kids, SCRIBBLES in her huge style illegible signature across the whole bottom part of the form. Then asks if she should date it. She looks up and see that the guy is dumb struck! Um.....he said I wanted you to put that you have liver and lung disease there. You sign it below. We all just started cracking up. We were laughing so hard. Yes, she had to sign it again in the small BOX designated signature.

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The stress test, adinacin test, abdominal CT and chest x-ray have been cancelled. The ones she has had are good enough. WOO HOO. She only needs her dexascan and dental clearance with some blood work and she is ready to go. It looks like her case goes to insurance review board either the 13th or the 20th of this month. Then we can go to the tx center.

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Biliary Atresia

Biliary atresia is a condition in which the ducts that carry bile from the liver to the gallbladder and small intestine are not normal. These ducts can be injured, blocked, or missing. When the ducts that carry bile out of the liver are closed, bile backs up and damages liver tissue. In time the liver can develop scarring or cirrhosis. The gallbladder may also be abnormal or missing. The cause of Biliary Atresia is unknown. It occurs in one infant in every 15,000 live births. It is a serious disease which requires immediate surgical and medical treatment.

Arteriovenous Malformations AVMS

I have been diagnosed with AVMS in my lungs do to my liver disease. These have caused me to have 2 lung bleeds which were very scary. I still have more AVMS and they are causing me breathing problems. Below is an explanation of what the AVMs are and a picture of what is happening in my lungs.

Arteries and veins are part of the human cardiovascular system. Normally, the arteries in the vascular system carry oxygen-rich blood at a relatively high pressure. Structurally, arteries divide and sub-divide repeatedly, eventually forming a sponge-like capillary bed. Blood moves through the capillaries, giving up oxygen and taking up waste products from the surrounding cells. Capillaries successively join together, one upon the other, to form the veins that carry blood away at a relatively low pressure. The heart acts to pump blood from the low pressure veins to the high pressure arteries.
If the capillary bed is thought of as a sponge, then an AVM is the rough equivalent of jamming a tangle of flexible soda straws from artery to vein through that sponge. On arteriogram films AVM formation often resemble a tangle of spaghetti noodles. This tangle of blood vessels forms a relatively direct connection between high pressure arteries and low pressure veins.
The result is a collection of blood vessels with abnormal connections and no capillaries. This collection, often called a nidus, can be extremely fragile and prone to bleeding.