In My Shoes: Just Stop

Thursday, July 2, 2009

Just Stop

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There have been something said about how I am handling my health and the care that I receive. I understand that some people maybe be concerned about these things. But to go off and say that I am not doing the right thing and I am causing my own problems is quite rude. For those of you who feel that way you have no idea how much I have fought and how much I have gone through. Being concerned and telling me that how I am handling things is wrong are two different things and the second one is really hurtful. I've even heard these things from parents who's children are going through similar issues and I just think that goes to show how much people really don't understand. My doctors and I are all really frustrated about things and it's nothing and I mean NOTHING they are doing wrong. So really think people need stop and think about what they're saying before opening their mouths. If you don't have anything nice to say then you can just shut up because I don't want to hear it. Besides it is my life and my decision. I'm doing the best with what God gave me.
Fiona

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Biliary Atresia

Biliary atresia is a condition in which the ducts that carry bile from the liver to the gallbladder and small intestine are not normal. These ducts can be injured, blocked, or missing. When the ducts that carry bile out of the liver are closed, bile backs up and damages liver tissue. In time the liver can develop scarring or cirrhosis. The gallbladder may also be abnormal or missing. The cause of Biliary Atresia is unknown. It occurs in one infant in every 15,000 live births. It is a serious disease which requires immediate surgical and medical treatment.

Arteriovenous Malformations AVMS

I have been diagnosed with AVMS in my lungs do to my liver disease. These have caused me to have 2 lung bleeds which were very scary. I still have more AVMS and they are causing me breathing problems. Below is an explanation of what the AVMs are and a picture of what is happening in my lungs.

Arteries and veins are part of the human cardiovascular system. Normally, the arteries in the vascular system carry oxygen-rich blood at a relatively high pressure. Structurally, arteries divide and sub-divide repeatedly, eventually forming a sponge-like capillary bed. Blood moves through the capillaries, giving up oxygen and taking up waste products from the surrounding cells. Capillaries successively join together, one upon the other, to form the veins that carry blood away at a relatively low pressure. The heart acts to pump blood from the low pressure veins to the high pressure arteries.
If the capillary bed is thought of as a sponge, then an AVM is the rough equivalent of jamming a tangle of flexible soda straws from artery to vein through that sponge. On arteriogram films AVM formation often resemble a tangle of spaghetti noodles. This tangle of blood vessels forms a relatively direct connection between high pressure arteries and low pressure veins.
The result is a collection of blood vessels with abnormal connections and no capillaries. This collection, often called a nidus, can be extremely fragile and prone to bleeding.